Moving to a Different Mode of Care

We got some incrediably hard news yesterday from the doctors.  Shawn’s lungs are just too weak to breathe off adequate amounts of carbon dioxide.  This is causing him to be a bit confused and tired.  Given the quick progression of the cancer around his lungs, there is no turning back from this condition.  Therefore, they are no longer treating him to cure his disease, but they will be trying to keep him as comfortable as possible for the time we have left with Shawn.  

Despite this devastating news, yesterday was actually a really good day.  Shawn was mostly alert and awake.  He ate well (breakfast and dinner), we took him for a walk around the hospital, he talked to his friends and he hugged people.  We got a family picture and even got a Noelle group selfie. 







Comments

  1. I am so very sorry for this sad news. Keep the faith. Stay the course. Fight the good fight. You have and will continue to do so. My love, hugs, thoughts, and prayers to you all.

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  2. Love all the smiles in this picture! Praying for you all during this time. That you will all find the loving father who takes over when we just cant anymore. He will love you, hold you, care for you all. I pray you allow him to do this and share all your thoughts and feelings with the loving father and embrace him during this incredibly difficult time. Nothing like falling into the perfect fathers arm when this fallen world gives us more than we can handle.

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  3. People all over, even from your roots of Windsor, are praying fervently for you all. We send love and hugs and are thankful for the assurance of our Hope that this life is not the end.

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  4. I hope the many memories your family has of the years with Shawn Jr. assuage the pain. You are in our thoughts and prayers.

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  5. I'm glad you have this time to love each other with intent. God be with you all.

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  6. Oh my goodness, I have only found out about this today! Where have I been? I am not sure. My heart is hurting for all of you, although we know God is in control, this does not diminish our pain as we watch a loved one, so sweet as Shawn, go through this difficult journey. I am praying for sweet times, precious moments, peace, comfort, and LOvE to surround this dear precious boy and his family and friends. Sad it's been so long since we have seen you all but know that we are with you, even joining in this journey so late. Thank goodness Joseph and Lauren posted on FB otherwise I do not think I would have known. I am honored to join in prayer with you all. Love to you ALL,
    Rebecca De Loache

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  7. Shawn - I am so sorry to hear this update. I will pray for your strength and God's comfort around you and your family during this difficult time. I've seen this pain up close and I know how hard it can be. However, I also know your faith will hold you up and see you through this period. Enjoy the moments with your son and take plenty of pictures. May God's peace be with you. Vicky McPherson

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  8. Noelle and I were inseparable for some time giving me the chance to get to know this beautiful family. Each of you have an incredible gift, extending smiles and kind thoughts to everyone you encounter. I have not gone a day without your family being on my mind and in my prayers since hearing the news. I took a philosophy of self course last semester. Although yes, I am still on the journey of the unknown, I do believe the body is an earthily distraction keeping our souls from obtaining true honesty, equality, love, happiness and health. Hope to be face to face with all of you in this life. If this is not the case, soul to soul will have to do.

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