Every Day is a Winding Road

When I woke up very early this morning, my primary concern was that Shawn Jr had not been able to sleep all night.  This has been going on for several nights.   He has a thightness in his chest and was anxious about sleeping.  I was brainstorming the best way to help him.  I left work early, came back to Heath and started building a plan.  We would drain his lungs, set up a completely dark room, have him put on a BreathRight strip, take a melatonin pill, put on some music, start some lavender essential oils in a diffuser and have him go to sleep.  This seems like a good plan until it failed in step one!

We are started draining his lung and it stopped.  The Plurex catheter in his left lung was clogged again. I spoke to the on-call doctor on the pulmonary team at MD Anderson. He suggested we come down to MD Anderson because, while any hospital could unclog it, the MD Anderson team would need to consider other options to ensure this issue is addressed, long term.

So, we are in the car for another (unexpected) 4 hour drive.   I really think that may end up being a blessing.  Maybe Shawn Jr can sleep in the car.

We are learning that there is always a new challenge.  Like Sheryl Crow said - everyday is a winding road.




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